Surprising diagnosis

Ok, I’m going to try to keep this short (😆) but I need to start from the beginning.

A couple months ago my friend asked me if I feed grain free food to my boys, I told her that Axel is fed grain free but not Gizmo. She told me about her friend who just lost her two young dogs within a week of each other from nutritional dilated cardiomyopathy (DCM). So she led me to a Facebook group to do some research. I was hesitant until I started reading all these cases of these young dogs dying from this disease. Symptoms show up when it’s too late ☹It was horrible, and I felt sick to my stomach to think I’ve been killing my dog by feeding what I thought was the best food for him?!

So I went to my vet and just inquired with the girl at the desk if this is true and she said absolutely. She gave me an example of her friends dog who was on just a normal walk a week prior and collapsed, owner brought the dog in who was then diagnosed with DCM and then died within a week. So, now I’m even more worried and booked an appt with the vet for the next available which was a week away, ugh!

Fast forward to that appt. He listened to Axel’s heart and couldn’t hear any murmur, he checked his blood pressure and all was fine. So he said he checks out fine but the only way to truly rule it out was to have an ECHO done. So I said yes, let’s absolutely do it. So he sent a referral to a cardiologist clinic and I had to wait for their call. In the mean time I asked if I should switch his food, he said absolutely, that either Royal canine or Purina Pro Plan are the best choices as they are the only food brands that have a nutritionist on their team, which I knew already because of all my research, but felt good to have it confirmed. So I switched Axel from Acana to Purina Pro Plan.

Last week we finally had an appt with the cardiologist for the ECHO. I had to leave Axel there for the day and then pick him up and simply wait for the results from our regular vet. Ugh again.

Finally four days later I get the call from the vet. He said the ECHO showed no DCM at all, so that was a relief, but then he said ‘but’ and my heart dropped. He does have Mitral valve disease. He said he is so young and so shocked that he has this, it’s something that he would expect to see if he was an older dog. He blabbed on some more but I was in so much shock that I honestly don’t remember much from that call. I hung up the phone, picked Axel up from daycare and went home and cuddled him and cried.

Yesterday I asked for the vet to call me again because I had many questions. He called me at the end of his shift- probably prepared for me to take up quite some time which I really appreciated. Basically he said the murmur is really minor right now and it’s very lucky that I asked for the ECHO because now we know it is there and we can keep an eye on it. Because he couldn’t hear the murmur at the office visit he thinks it would still be a couple years until he would even be able to pick it up with his stethoscope, he said four years roughly. He said it’s very early still so no meds are needed yet. He said that he can see Axel living a long happy life still, even when eventually he will need meds for congested heart failure😭I need to inform Axel’s Breeder and all the siblings I know as this is quite serious and something others should be maybe looking into to be preventative. Axel will need yearly chest X-rays to monitor the size of his heart, and yearly ECHOs to monitor the valve, and blood work also.

After our big hike yesterday I worried that maybe I was doing more harm than good but the Vet told me that no it’s really good for him to exercise his heart like that so not to do anything different, just keep doing what I’ve always done as he’s a very healthy dog otherwise. So my plan going forward is to spoil him, with wonderful walks and swimming and all the fun stuff and to take more photos! So you guys may be seeing more photos of our adventures!

So, the first call had me thinking Axel would only live a couple more years, but now I feel I have a few more to spoil him rotten with. I’m so thankful that I found this out even though at first I was so upset (ok I’m still devastated) But now we know and can monitor it. It also has me wondering how many dogs have this but don’t know because an ECHO is only done typically when symptoms show up or a murmur is heard with a stethoscope. Only reason I did the ECHO is because my anxiety of the ‘what if’ he has DCM from the food. Sigh.

Here is a picture to show his shaved chest, he has a bigger patch on the other side of him too. This angle makes his head look tiny lol 😆

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Oh you poor love, what a worrying time you have had x If its any comfort , my old terrier Toby was diagnosed with a murmur and leaky valves , he led us a merry dance until he died of a stroke aged 19 . I agree, allow him to do what he wants to do and rest if he wants to, in other words, life as normal . It must have been a relief for you on the one hand , and good for you for insisting on testing him in the first place , at least you know the score now xxxx
 
Oh Kelsey I am absolutely shocked that Axel has this condition but very grateful to your friend for bringing a food related disease to your attention which uncovered Axel's condition. Great that you got your boy to the vet without delay. Well done you. Without that conversation you would be in the dark. Axel can live a fulfilled life with you and with constant checkups he will be as happy as any other dog. Enjoy him and NEVER hesitate posting as many photo's of Axel as you can manage. He is a beautiful boy inside and out, your best friend and better than any human to have by your side. Much love to you, Axel and Gizmo xxx :hug::hug:
 
Being proactive is the best you can do! I also moved Quinn back onto grains months ago on vet advice, as a murmur was discovered when she was ill in the fall and the concern with the studies around dcm. With all the other vet stuff that’s gone on with her, I hadn’t even thought of an echo but might inquire after hearing this. Axel is healthy now and he’s none the wiser so extra fun and cuddles for sure!
 
I'm very sorry about Axel but I know he'll have a great life with you. Monitoring and management will maintain him. He's such a gorgeous boy and loved by us all. It's hard now but it will become part of your life together. You take care of yourself too it's a big shock. Hugs and lots of love from me and Rory xxx
 
What a shock for you. But you know what you're dealing with. Axel is going to live a normal life and he will be monitored. And he's going to be even more spoiled. Hugs from us.
 

Boogie

Moderator
Location
Manchester UK
Bless him and you xx

My Callum had the same and he lived a happy 15 years! When he was 6 months old I took him on, out of kindness, as the breeder had been told he’d live to 18 months if he was lucky.

Every vet who listened to his heart said they’d never heard such a slushy heart.

But Callum didn’t know that - he just got on with it. When he’d walked enough he just stopped and I carried him home. He only needed medication for his last two years. Yes, he did die of heart failure, but after a long and good life.

.
 

Jacqui-S

Moderator
Location
Fife, Scotland
Ah...Kelsey.......Axel has the best dog mum.
Nothing wrong with extra cuddles.
A shock, but better to know and adjust that go blithely on.
Photos are always welcome xxxxx
:hug:
 
Being proactive is the best you can do! I also moved Quinn back onto grains months ago on vet advice, as a murmur was discovered when she was ill in the fall and the concern with the studies around dcm. With all the other vet stuff that’s gone on with her, I hadn’t even thought of an echo but might inquire after hearing this. Axel is healthy now and he’s none the wiser so extra fun and cuddles for sure!
I would definitely ask for an ECHO to be done at some point, just so you know for sure. Was your vet able to tell you which valve had the murmur? Although I’m not sure if they can truly tell without an ECHO, but I could be totally wrong. This is all very new to me
 
Thank you everyone for the kind words, as always ❤ I wish I had spoken up on here sooner instead of holding this all in but I’m pretty bad at hiding things until I know for certain what I am dealing with. Suffer in silence type of person I suppose.

@kateincornwall @Jelinga @Boogie thank you for your similar stories. Gives me hope that Axel will indeed live a long happy life. Just wondering if they all had Mitral Valve Disease? My understanding is, depending which ventricle the murmur is, a dog may never show signs or symptoms. But being that Axel’s is in the left ventricle, from what I read, it appears to be the worst spot for a murmur 🥺
 
I'm so sorry that you've had this diagnosis, I can imagine what you're feeling - a mixture of terror and relief that it was found.

I might start another thread on DCM at some point because there is SO much misinformation out there about it at the moment. The group I'm sure you were pointed to is useful, but they audit their feed very heavily to remove anything that suggests other feeding regimes other than the few approved foods that are on their list, or anyone that discusses actual evidence - because, at this point, that is severely lacking. Anyway, that's for another post.

On the plus side, more exciting walks, yay!! :D
 
@snowbunny I'd be really grateful if you could start a thread on DMC. I actually did have a dog die of it some years back. I was told by the vet that she probably had it long before I got her but I have been very aware that the risk exists and I am never quite sure what to believe. Anything you know would certainly help to put my mind at rest.
 

HAH

Moderator
Location
Devon, UK
Thank you everyone for the kind words, as always ❤ I wish I had spoken up on here sooner instead of holding this all in but I’m pretty bad at hiding things until I know for certain what I am dealing with. Suffer in silence type of person I suppose.

@kateincornwall @Jelinga @Boogie thank you for your similar stories. Gives me hope that Axel will indeed live a long happy life. Just wondering if they all had Mitral Valve Disease? My understanding is, depending which ventricle the murmur is, a dog may never show signs or symptoms. But being that Axel’s is in the left ventricle, from what I read, it appears to be the worst spot for a murmur 🥺
You’re being really brave Kelsey, and Axel couldn’t have a better friend in his corner. It sounds like there’s a lot of experience here on the forum which will hopefully help at least in terms of solidarity. Look after yourself while you start to take it all in xxx
 
I would like that. It's all so muddy
It is! And that's the issue - it's where we are right now. A whole lot of "don't knows".

Anything you know would certainly help to put my mind at rest.
I don't know enough to give any answers, sadly, but will start the thread with what is known and what is believed (by all sides) - hopefully providing a balanced view for people to make decisions. It's a scary disease, for sure, and something everyone should be aware of, without being petrified of.
 

Lisa

Moderator
Location
Alberta, Canada
Aw so sorry you have had this shock. But to add to the other stories...my Border Collie Jet had a heart murmur - vet picked it up with a stethoscope when he was very young. I didn’t do any tests, vet kept an eye on it throughout his life. He was happy and active right up until the night he died, at the ripe old age of 17. :)
 
I’m so sorry to hear this. I can imagine how shocked you must feel. We just want the best for our dogs and it’s so upsetting when they aren’t 100%.

I see that snowbunny said she’d start a new DCM thread. But in the meantime, here’s a link that I think provides useful reading: The Heart of the Matter

While it seems there is so many factors, one that is interesting to me is how “grain-free” gets the blame. Correlation doesn’t equal causation. It’s not necessarily the *lack* of grains that’s the problem.

I hope you don’t remain worried. I know easy to say, difficult to do. Luckily Axel is none the wiser. And there are so many wonderful stories of dogs that lived happily to old age with murmurs. Thinking of you and hope things just get better and better.
 

Joy

Location
East Sussex
I'm so sorry you've had this shock- it must have been devastating. But it's great that the vet thinks that Axel should go on enjoying regular exercise with you.
 
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